Why We’re Here

The Light Collective is advancing digital rights for patient communities online. Healthcare technology can move faster than our ability to safeguard ourselves from its consequences.  As patient communities adopt new technologies, we humans affected by those technologies must be fairly represented in the algorithms that affect our lives and our health.  Representation must be tied to real legal rights, duties, accountability, and digital governance.

Where We’re Headed

We serve a pilot cohort of online patient communities whose leaders serve on our Board. We have some unprecedented challenges to tackle, and are looking for people who are ready to fundamentally change the relationship between patient communities and the tech platforms where we reside.  

As digital citizens, our guiding principle is No Aggregation Without Representation.  Are you ready to help us change the relationship between patient advocacy, social media, and new technologies?