No aggregation without representation
We are a collective of expert patients building tech & digital rights for you
What we do for patients.
Health Privacy & Security Research
We take a unique community-based approach to health privacy & security research to inform policy. We work with our diverse patient organizations to learn about benefit and risk of emerging health technologies.
Advance Digital Rights
Is your patient community adopting a new health technology or app? We are working with national initiatives to impact health tech policy designed by patient communities, for patient communities.
Improve Social Support
Social Support is a lifeline for many patients seeking knowledge, resources, and belonging. We work to improve social support as a practice through training programs, and patient-driven standards.
Recent Press
