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Who We Are

We are a nonprofit organization providing privacy advocacy and services to health communities. Our website address is:

What We Collect

This website is mainly used for educational purposes. We only collect information if you opt in to attend an event, or sign up for any of our email lists to participate in our programs. If you sign up for an event or email list, we may ask you for your name and email address in order to send you information that you are requesting.

We may ask other questions in order to improve a specific program or service we are offering. See “Where We Send Your Data” for overview of tools we use.

What rights you have over your data

If you have an account on this site, or have left comments, you can request to receive an exported file of the personal data we hold about you, including any data you have provided to us. You can also request that we erase any personal data that our organization holds about you. This does not include any data we are obliged to keep for administrative, legal, or security purposes.

Where we send your data

We use a range of services in order to run the website and communicate.

  • WordPress is owned by a company called Automatic. This is a commonly used website service hosting service that allows us to build the content on our website. WordPress has features that allow us to gather information when you leave comments (see Comments section below). Here is Automattic’s Privacy Policy.
  • Typeform. This service is used if you sign up to any events, or to be added to our mailing list. We create sign-up forms for anyone who opts in to join an event, or receive our newsletters. Here is Typeform’s Privacy Policy.
  • Stripe. If you process a donation on our website, we use a service called Stripe. Read further here for Stripe’s Privacy Policy.
  • Campaign Monitor. If you sign up to be contacted for an event or added to our mailing list, we send updates and newsletters through a email tool called Campaign Monitor. Here is Campaign Monitor’s Privacy Policy.

Each of these services are governed by their own policies. When we use these tools we are required to comply with their policies. We do not share information we collect about you without asking you first.


When visitors leave comments on the site we collect the data shown in the comments form, and also the visitor’s IP address and browser to help spam detection.

An anonymized string created from your email address (also called a hash) may be provided to the Gravatar service to see if you are using it. The Gravatar service privacy policy is available here: After approval of your comment, your profile picture is visible to the public in the context of your comment.

How long we retain your data

If you leave a comment on our website’s blog, the comment is public and its metadata are retained indefinitely.

For users that register on our website to leave comments, we also store the personal information they provide in their user profile. You are not required to use your real name if you prefer to leave an anonymous comment. All users can see, edit, or delete their personal information at any time (except they cannot change their username). Website administrators can also see and edit that information.


This site does collect cookies in order to operate the site. You can read all about cookies at

WordPress has a policy and detailed explanations of cookies here. There is one third party trackers on WordPress that we cannot turn off called and These are required for any WordPress site and we do not control or access the data from these trackers.

The types of cookies we use are only for the site to function, and to know how many people visit our site. Functional cookies are for your convenience so that you do not have to fill in your details again when you leave another comment. These cookies will last for one year.

If you visit our login page, this sets temporary cookie to determine if your browser accepts cookies. This cookie contains no personal data and is discarded when you close your browser.

When you log in, WordPress will also set up several cookies to save your login information and your screen display choices. Login cookies last for two days, and screen options cookies last for a year. If you select “Remember Me”, your login will persist for two weeks. If you log out of your account, the login cookies will be removed.

We do not use marketing cookies. Marketing cookies are used to target advertising to a user (behavioral targeting).

Embedded content from other websites

Articles on this site may include embedded content (e.g. videos, images, articles, etc.). Embedded content from other websites such as Youtube or Vimeo behaves in the exact same way as if the visitor has visited the other website.

These websites may collect data about you, use cookies, embed additional third-party tracking outside of our control, and monitor your interaction with that embedded content, including tracking your interaction with the embedded content if you have an account and are logged in to that website.

Contact us if you have questions.

As a privacy-focused nonprofit, we recognize there’s always room for improvement, and welcome your suggestions. If you have any questions or concerns about our privacy practices please email us:

This policy was updated as of February 5, 2021.