No aggregation without representation
We are a collective of expert patients building tech & digital rights for you
What we do for patients.
Security Research
We research and document benefit and risk of patients’ collective health privacy on incumbent social media platforms.
Advance Digital Rights
Is your patient community adopting a new health technology or app? We evaluate and negotiate with tech platforms through our uniquely developed requirements for digital rights.
Improve Social Support
Social Support is a lifeline for many patients seeking knowledge, resources, and belonging. We work to improve social support as a practice through training programs, and patient-driven standards.
We are now organizing community leaders to go through our new training program and cohort for 2023.
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Recent Press
