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No aggregation without representation

We are a collective of expert patients building tech & digital rights for you

What we do for patients.

Security Research

We research and document benefit and risk of patients’ collective health privacy on incumbent social media platforms.

Advance Digital Rights

Is your patient community adopting a new health technology or app?  We evaluate and negotiate with tech platforms through our uniquely developed requirements for digital rights.

Improve Social Support

Social Support is a lifeline for many patients seeking knowledge, resources, and belonging.  We work to improve social support as a practice through training programs, and patient-driven standards.

Want to join us?

We are now accepting applications for 2024.

Apply Here