Here’s the path we’ve chosen.
It’s time for a change when it comes to sharing health knowledge and protecting privacy outside the walls of a clinic. Patients are losing access to care and meds, while desperately seeking knowledge online.
We cannot realize the benefits of social media for health until we address underlying problems that exist for vulnerable communities whose health privacy can be abused.
When our inaugural group of advocates and expert came together to decide on a vision, we converged around key aspects of our roadmap: governance, quality content moderation, fair partnerships, cyber hygiene best practices, and digital rights.
Change doesn’t happen overnight.
We’re making headway on this roadmap by educating the leaders of patient communities. Check out the resources we’ve developed, read our blog, or watch the videos we’ve organized for peer support groups.
We need your support. Consider donating to help us create a collective vision for patient support groups to have autonomy, rights, and safe spaces on social networks.