In response to recent announcements from Facebook, the Light Collective is proposing a community-driven approach to governance of Facebook’s platform, today (Sept 21st 2019) at the Medicine X conference in...
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There have been many new developments since we originally found this security flaw with Facebook’s group settings that impacted millions of people. SicGRL is no longer the only issue that the patient community has with Facebook. There have also been subsequent vulnerabilities discovered beyond SicGRL that impact the safety of Facebook users. This blog post is a high-level summary and update about what has changed since the FTC got involved—and, importantly, what has not changed.
I think we need to create a “whole-community response” in health and health care. We need to acknowledge that our “locals” (aka patients, caregivers, and other non-professionals) are essential partners in a health crisis.
by Andrea Downing This post was originally written on Tincture. Seven years ago, I was utterly alone and seeking support as I navigated a scary health experience. I had a…
APRIL 29, 2019 By SUSANNAH FOX There has been a steady drip-drip-drip of articles documenting how health apps are sharing data with third parties: Data sharing practices of medicines related apps and…
Published at Brave Bosom Background: About Peer Support Groups & BRCA Community For anyone reading this who is not part of a support group on Facebook, let’s start there. Many…