FOR IMMEDIATE RELEASE The Light Collective, a patient advocacy group committed to protecting privacy and patient rights, today announced it has submitted a formal complaint to the Federal Trade Commission…
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Now is the time for the patient perspective to be truly seen rather than tokenized, and understood rather than simply heard. We hope to cultivate a future where current and future patients have the rights and resources to gain autonomy over their own data, supported by a heightened public awareness, government policy, and adjusted corporate practices. There can be no aggregation of our data without representation of the patient voice.
In response to national initiatives forming artificial intelligence (AI) standards, codes of conduct, and bills of rights in healthcare settings, largely in the absence of input from patient communities, AI Rights for Patients was launched today by The Light Collective.
The Light Collective is thrilled to announce our partnership with CancerX, a public-private partnership co-hosted by Moffitt Cancer Center and the Digital Medicine Society (DiMe).
Our latest research was featured in Wired and Ars Technica!
We are thrilled to have the chance to make the news again, and will continue to shed light on ways patient communities can have their privacy and collective rights respected.
In response to recent announcements from Facebook, the Light Collective is proposing a community-driven approach to governance of Facebook’s platform, today (Sept 21st 2019) at the Medicine X conference in...
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