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Announcements

Public Comment Alert: ASTP/ONC Deregulatory Actions to Unleash Prosperity

By Announcements

Most of us assume that when our health info moves between a doctor’s office, a hospital, a pharmacy, or an app, there are basic safety checks in place—like “you can’t log in without strong protection,” “your data is encrypted,” and “there’s a record of who accessed it.” Those basics matter because when health data leaks or gets misused, the harm isn’t abstract. It can mean an abuser finds you, an employer learns something they shouldn’t, your insurance situation gets complicated, or you lose trust in care and stop seeking it.

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PRESS RELEASE: Patient’s Organize for Their Digital Rights at World Patient Safety Day in DC

By Announcements, For Everyone, Press Release

Now is the time for the patient perspective to be truly seen rather than tokenized, and understood rather than simply heard. We hope to cultivate a future where current and future patients have the rights and resources to gain autonomy over their own data, supported by a heightened public awareness, government policy, and adjusted corporate practices. There can be no aggregation of our data without representation of the patient voice. 

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Remembering Karl “KJ” Surkan

By Announcements3 Comments

It is with a heavy heart that we announce the unexpected passing of our dear friend KJ Surkan. KJ passed away peacefully in his sleep on Saturday, January 28th. Born February 6, 1969, KJ was a light in this world and was an integral part of our community. There are no words to express our deep sorrow but we are grateful to have known KJ.

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