A 2023 Study by Joanne Kim at Duke University, found that data brokers are marketing highly sensitive data on individuals’ mental health conditions on the open market, with seemingly minimal…
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Safety – Back in the Day For over a decade, I’ve had the privilege of engaging with various patient communities, both in person and online. During this time, I’ve witnessed…
It is both appropriate and regrettable that October is Breast Cancer Awareness Month and Cybersecurity Awareness Month. As breast cancer survivors, collaborators with online patient communities, and founders of an organization representing the rights and voices of patients in healthcare technology, we are committed to using technology to educate, support, and empower as many breast cancer patients as possible so they can have the knowledge and tools to beat cancer and live their best lives.
While these changes were widely praised and covered in the media as a step to make the platform safer, this new analysis shares the current state of ad targeting tools to infer an individual’s “interests” as a proxy for medical history.
Such organizations often deal in sensitive issues, like mental health, addiction, and reproductive rights—and many are feeding data about website visitors to corporations
There have been many new developments since we originally found this security flaw with Facebook’s group settings that impacted millions of people. SicGRL is no longer the only issue that the patient community has with Facebook. There have also been subsequent vulnerabilities discovered beyond SicGRL that impact the safety of Facebook users. This blog post is a high-level summary and update about what has changed since the FTC got involved—and, importantly, what has not changed.
by Andrea Downing This post was originally written on Tincture. Seven years ago, I was utterly alone and seeking support as I navigated a scary health experience. I had a…
Published at Brave Bosom Background: About Peer Support Groups & BRCA Community For anyone reading this who is not part of a support group on Facebook, let’s start there. Many…