Once Upon A Time (last week)…Anthropic gave users access to Claude Fable 5. There was a great empire full of kingdoms fighting over who had the most powerful AI chaos magic so they could conquer each other. One of the kings, Dario Amodei was the king of Anthropic’s growing fiefdom. He summoned his best wizards to make a creature of pure chaos magic that could find cracks in any ivory tower, better than all the other kings’ magic.
When health systems and policymakers think about designing AI for the clinic—slow, controlled, locked inside compliance and limited scope of a clinical encounter. Technology companies like Meta, Google, and Microsoft, on the other hand, thinks about “users”—scaling fast, collecting data first, and asking forgiveness never. And right in that no-man’s land sit patients, who are using AI every day without rights, safety nets, or protections. They’re treated as neither full citizens of the clinic nor valued customers of tech—just data streams to be mined. That gap is where harm festers, safety issues linger, where trust collapses, and where the most vulnerable are left to carry the risk alone.
Health AI Partnership: Patient Community Wisdom From Past Waves of Technology Innovation to Build The Future of AIHealth AI Partnership
In response to national initiatives forming artificial intelligence (AI) standards, codes of conduct, and bills of rights in healthcare settings, largely in the absence of input from patient communities, AI Rights for Patients was launched today by The Light Collective.
© 2026 Light Collective.
