Today is World Patient Safety Day, and The Light Collective is proud to share new community-based participatory research on patient priorities in health technology. Health data regulations today are fraught…
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Now is the time for the patient perspective to be truly seen rather than tokenized, and understood rather than simply heard. We hope to cultivate a future where current and future patients have the rights and resources to gain autonomy over their own data, supported by a heightened public awareness, government policy, and adjusted corporate practices. There can be no aggregation of our data without representation of the patient voice.