Experts say some hospitals’ use of an ad tracking tool may violate a federal law protecting health information
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While these changes were widely praised and covered in the media as a step to make the platform safer, this new analysis shares the current state of ad targeting tools to infer an individual’s “interests” as a proxy for medical history.
Facebook pledged to remove race, health conditions, and political affiliation from ad-targeting options, but The Markup found advertisers can still easily target the same people By: Angie Waller and Colin…
We are expanding our team and hiring part time patient leaders to work on an exciting new project.
Our latest research was featured in Wired and Ars Technica!
We are thrilled to have the chance to make the news again, and will continue to shed light on ways patient communities can have their privacy and collective rights respected.
We’re expanding our Board. Want to join us? The Light Collective is advancing digital rights for patient communities online. You can read all about our mission here. Healthcare technology can…
Such organizations often deal in sensitive issues, like mental health, addiction, and reproductive rights—and many are feeding data about website visitors to corporations
In response to recent announcements from Facebook, the Light Collective is proposing a community-driven approach to governance of Facebook’s platform, today (Sept 21st 2019) at the Medicine X conference in...
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I think we need to create a “whole-community response” in health and health care. We need to acknowledge that our “locals” (aka patients, caregivers, and other non-professionals) are essential partners in a health crisis.
by Andrea Downing This post was originally written on Tincture. Seven years ago, I was utterly alone and seeking support as I navigated a scary health experience. I had a…