The Light Collective is advancing the collective rights, voices, and interests of patient communities in healthcare technology. You can read all about our mission here. Healthcare technology can move faster than our…
Read More
It is with a heavy heart that we announce the unexpected passing of our dear friend KJ Surkan. KJ passed away peacefully in his sleep on Saturday, January 28th. Born February 6, 1969, KJ was a light in this world and was an integral part of our community. There are no words to express our deep sorrow but we are grateful to have known KJ.
It is both appropriate and regrettable that October is Breast Cancer Awareness Month and Cybersecurity Awareness Month. As breast cancer survivors, collaborators with online patient communities, and founders of an organization representing the rights and voices of patients in healthcare technology, we are committed to using technology to educate, support, and empower as many breast cancer patients as possible so they can have the knowledge and tools to beat cancer and live their best lives.
There is a new report from George Washington University called Digital Trade and Data Governance Hub rates 68 countries on their approaches to data governance. This report scores each country on 26 factors over six categories.
Experts say some hospitals’ use of an ad tracking tool may violate a federal law protecting health information
While these changes were widely praised and covered in the media as a step to make the platform safer, this new analysis shares the current state of ad targeting tools to infer an individual’s “interests” as a proxy for medical history.
Facebook pledged to remove race, health conditions, and political affiliation from ad-targeting options, but The Markup found advertisers can still easily target the same people By: Angie Waller and Colin…
We are expanding our team and hiring part time patient leaders to work on an exciting new project.
Our latest research was featured in Wired and Ars Technica!
We are thrilled to have the chance to make the news again, and will continue to shed light on ways patient communities can have their privacy and collective rights respected.
We’re expanding our Board. Want to join us? The Light Collective is advancing digital rights for patient communities online. You can read all about our mission here. Healthcare technology can…